Speech Pathology: What’s In a Name? {guest post}

We were blessed with a pretty awesome team of therapists at our local branch of Disability Services Queensland and I have often said that it never felt like a chore to take Nicholas there because the adults always seemed to be having just as much fun as the kids! I was impressed...Read More

No Love Like Ours

I know the fear and darkness associated with receiving a difficult diagnosis for our child. I also know the infinite love that has come with knowing our child. Does that infinite love mean we never worry about our children? Does it mean we never ever think about the diagnosis again because we...Read More

How to Describe Veronika {guest post}

I'm not sure who is more famous, Veronika or her mum, Kylee, but there is no doubt in my mind that they are both remarkable women who inspire those around them each and every day. I am so glad that Kylee is able to share part of their family's story here - a...Read More

Fearless Heart {guest post}

As often happens in this beautiful Down syndrome community, sometimes we only meet other parents online and yet there is a deep connection that occurs. From the moment I 'met' Helen, I was impressed with her expansive knowledge and wise, yet humble, approach. I feel honoured that she has honestly shared her...Read More

Flawed Bid for Perfection

Our handsome boy graced the pages of Queensland's major newspaper, The Courier Mail,  again today (with our permission). It was with a mix of pride and sadness that I read the words written by Kylie Lang in her opinion piece about the proposal that new non-invasive prenatal testing be covered...Read More

A Little Snippet

When I go to our computer and do a search based on video files, it appears I have about 700 clips of my children. None of them are very long, some of them are two second video-selfies that the boys have taken of the tops of their own heads, but...Read More

How He Made Me Aware {guest post}

Sometimes you meet someone and just realise there’s a connection. This was certainly the case when I met Ange online through a Down syndrome writers forum. While not really knowing each other from a bar of soap, I felt very honoured that she and her family went out of their...Read More

Bring on October {Down syndrome Awareness Month}

I’m pretty sure every year as October approaches and I attempt to prepare for Down syndrome Awareness Month on the blog, I struggle to find the right words to share with you. This year is no different. Perhaps it’s even harder now, as the boy who made Down syndrome Awareness...Read More

The Big Ride {we need your help}

When our lovely friends Tricia and Randall told us they were signing up for an 800 kilometre bike ride through Thailand back in 2014 to raise money for the Hands Across the Water organisation, I did what any rational friend would do. I said something really supportive, like, “Oh wow,...Read More

Four Years in Photographs

This is the photo montage video that was played during Nicholas' funeral service on 6 May. You may recognise the first song from the video I made when we celebrated his second birthday. A very big thank you to our beautiful friend Roxanne for putting together the second song, and for...Read More

Boy oh Boy oh Boy: life with three boys {guest post}

As a mother of three boys, I always love meeting other mums who are part of that exclusive 'all-boy' club too. I was introduced to the lovely Peta when, together with my sister, Rebecca, and brother-in-law, Joe, they began the awesome 4 Blades Magazine. So, when I contemplated asking other bloggers...Read More